If I Had Only Known…










…I Could Die From A Seizure

My name is Cameron Benninghoven. I was almost 37 years old. I was very fit, active in business, and the picture of good health.

I did have epilepsy, but medication seemed to manage it very well. In fact, I had had only a few seizures since being diagnosed at age 16.

On the night of November 4, 2009, I went to bed as usual, fell asleep and I did not wake up. That night I died of SUDEP, (Sudden Unexplained Death from Epilepsy.) Yet the cause of death was reported as “natural causes.” Not even the medical examiner was thinking of SUDEP as the cause for my death.

I had no idea I could die from my epilepsy. My doctor never told me. My mom and dad never told me, but they didn’t know either.

If I could change things, I would want to understand better the seriousness of my disease, and thus perhaps protect myself and those I left behind. That’s why I am making it my mission now to increase awareness and stimulate research relating to this silent killer: Sudden Unexplained Death from Epilepsy…SUDEP.

My dream, and now the mission of my family and friends, is to help raise funds for the creation of a reliable database of information regarding SUDEP and related factors, and for the development of a monitoring or alarm mechanism for the prevention of SUDEP.

Through the realization of this dream, we can work to bring Hope for Other People with Epilepsy….HOPE4SUDEP.

By sharing my story I hope to spare others from SUDEP; if I had known more about SUDEP, I might be alive today.  Please forward to ALL… you never know who will be touched by my story and how it will impact another person’s life. You can also follow us on Facebook.

Thank you for supporting my dream and best wishes for your good health.

-Cameron Benninghoven